Thursday, February 25, 2010

I wanna talk about ME

So I know that a few of you know about the muscle disease that I have, some don't know what it is, and some don't know either of the two. So here goes:


(This all came from the MayoClinic.com)


"Polymyositis (pol-e-mi-o-SI-tis) is an uncommon connective tissue disease. It's a type of inflammatory myopathy, which is characterized by muscle inflammation and weakness. The most noticeable characteristic of polymyositis is weakness of the skeletal muscles, which control movement. It can occur at any age, but it mostly affects adults sometime between their 30's and 50's." (I was diagnosed at 17). "It's more common in blacks than in whites (obviously, I am white.) and women are affected more often than men are. Periods of remission in polymyositis, during which symptoms improve spontaneously, rarely occur. However, treatment can improve your muscle strength and function." (My treatment plan= working out as much as possible and a shot of methotrexate once a week.)

SYMPTOMS: "Signs and symptoms of poylmyositis usually appear gradually, so it may be difficult to pinpoint when they first started." (mine started when I was in high school... I needed help getting into a jacked-up truck and I also had a terrible time climbing bleachers.) "They may also fluctuate from week to week or month to month. Progressive muscle weakness is the most common polymyositis symptom. It typically affects the muscles closest to the trunk, such as those in your hips, thighs, shoulders, upper arms, and neck. The weakness is symmetrical affecting both the left and right sides of your body and tends to gradually worsen. Although the muscle weakness starts subtly, after it progresses over the course of the disease it can make it difficult for you to climb stairs, rise from a seated position, lift objects or reach overhead. Other polymyositis signs and symptoms include: difficulty swallowing, difficulty speaking, mild joint or muscle tenderness (i also have Rheumatoid Arthritis), fatigue, and shortness of breath."

CAUSES: "Polymyositis is in a group of diseases or disorders of the muscles called inflammatory myopathies. The cause of most inflammatory myopathies is unknown. Infections caused by bacteria, parasites or viruses can cause inflammatory myopathies, but in most causes of polymyositis, doctors aren't able to identify proceding infections. Some doctors think certain people may have a genetic susceptibility to the disease. Inflammatory myopathies share many characteristics with autoimmune disorders, in which your immune system attacks normal body components. Normally, your immune system works to protect your healthy cells from attacks by foreign substances, such as bacteria and viruses. If you have polymyositis, an unknown cause may act as a trigger for your immune system to begin producing autoimmune antibodies (auto antibodies) that attack your body's own tissues. Many people with polymyositis show a detectable level of auto antibodies in their blood."


*I hope I didn't bore you but I felt the need to share.

Wednesday, February 24, 2010

Simplified

Brandy, Simplified and me @ Wild Wings Cafe, Mt. Pleasant.
St. Patty's Day 2009
(terrible picture, I know)
Simplified is a band that I fell in love with when I lived in Charleston. I heard them a couple of times at the Windjammer and Wild Wings. Their music is great & unique!! I don't even know how to describe their sound... but original. I saw on Greenville's Wild Wings' website that they are coming to the upstate Friday, March 5!! I am so excited to be able to see these guys perform again!! Go check out their website and see for yourself!!

Don't Monkey Around with High Prices

This picture is not very good of Adam but it's very special to our family. My granddaddy started Bargain Bucks in Laurens years ago. My dad and my uncle both worked there until my dad branched out on his own to open Bucks Outdoors. This hat is Frank Barksdales' and it is an original. Frank lived across from my Papa and Lulu and has always been close to the family. Frank put the hat on Adam at Church of the Epiphany's oyster roast.

This is also not a very good picture but it's Adam's first snow... I still can't believe how much snow we got!! It was beautiful!!

Mary, Adam's other Godmother, gave Adam this toy for Christmas. He is finally at the age where he can sit on it by himself. He does fall off of it but he just laughs and gets back on. He loves it!!

Daddy bought Adam his first Citadel baseball hat when we were in Charleston a few weekends ago. Adam wasn't so sure about wearing it but I know he'll be sporting it this summer at the beach!!

Silly baby!!

Friday, February 19, 2010

Adam's Well Check


Grammie took Adam to the doctor yesterday for his 9 month well check. (He also has a double ear infection right now... I know I know, just something else to add to the list! )

But here are the latest stats on our little munchin:

Weight: 18 lbs (only doubled since birth) and is in the bottom 10th percentile
Height: off the charts!! (future basketball player??)
Head: 25th percentile
Teeth: SIX

With all of these ear infections, we are scared we may have to face tubes. GASP. No fun!! Go ahead and say it with me, BLESS HIS LITTLE HEART! But he just keeps on smiling and laughing right along!

Silly Post to Make YOU Smile

I got this forward this morning at work and couldn't resist posting it because I seriously was laughing out loud. I wish I could post the picture that went along with it... ummmm maybe later when I'm at home... (shhhh I'm at work)

YOU KNOW YOU ARE LIVING IN 2010 WHEN...

1. You accidentally enter your password on the microwave
2. You haven't played solitaire with real cards in years
3. You have a list of 15 phone numbers to reach your family of 3
4. You e-mail the person who works at the desk next to you
5. You reason for not staying in touch with friends and family is that theydon't have e-mail addresses
6. You pull up in your own driveway and use your cell phone to see if anyone is home to help you carry in the groceries
7. Every commercial on television has a web site at the bottom of the screen
8. Leaving the house without your cell phone, which you didn't have the first 20 or 30 years of your life, is now a cause for panic and you turn around and go get it
10. You get up in the morning and go on line before getting your coffee
11. You start tilting your head sideways to smile :)
12. You're reading this and nodding and laughing
13. Even worse, you know exactly to whom you are going to pass this along to
14. You are too busy to notice there was no #9 on this list
15. You actually scrolled back up to check that there wasn't a #9 on this list

AND NOW YOU ARE LAUGHING AT YOURSELF

Monday, February 15, 2010

Reid Got Hitched!!


Reid Cox married Paul Green Saturday, February 13, 2010 at Holy Cross Episcopal Church on Sullivan's Island. It was an elegant yet simple wedding. It also happened to be the same service that my mom and dad were married to, April 1, 1978. The reception was held at Ion Creek Club house in Mt. Pleasant. Everything about it was perfect!! The ceremony was beautiful along with the wedding party and the reception was tons of fun with delicious food, a fabulous band, lots of dancing and great friends! Congratulations and best wishes to the Greens!! Thanks for sharing your special weekend with all of us!

Reid dancing with his princess, Reid

Reid, Tina, & Mary Carson

Daddy & Linda Dell

Lee & Lillie

The Coxs with their beautiful daughter.

Marydele & Me

Rita & Milton

Ann & her girls

My favorite twins, Leigh & Lillie

dancing with Mama Dell...

Happy Valentine's Day

xoxoxoxoxox's
from our little 9 month old heart breaker!!
(I can't believe he's already nine months old!!)